Thursday, February 01, 2018

111 Days


Very few words are needed with pictures like these, which tell the story of this week:


 The day before surgery, he was unable even to open his eyes. The circumference of his head had grown again. 

Post op. "The first 24 hours were not super."












Oxygen removed, leaving just the feeding tube. Because he had a rough time after the surgery, the little pads were left in place in case there was further need to be hooked up again.












Held secure.









































"Tube and tape free!"


Mummy's and Daddy's observations this week:



"His head circumference came down by 1 cm and his skull seems more stable (less thin and fragile to touch). His hand grip is back to being strong and he is responding appropriately - a long step from the little, quiet rag doll that we saw over the previous 10-14 days. His neurosurgery team are happy with his progress and his MRI yesterday showed some reduction in the dilation of his ventricles. They anticipate about a 2 week period for things to settle out for Levi's new baseline ...


"We've been able to have lots of time holding our boy, which seems to be the best therapy for him ... and us. 


"We continue to pray for protection from infection and malfunction of the shunt, but are so grateful to God for making the way clear - first to wait, and then to proceed at the right time - His time ...

"We thank the Lord that He is patient with us, He is wise and He is kind, as some have reminded us. We thank you for loving us and reminding us of who God is when the darkness hides His face."


22 comments:

Lois Lewis said...

So glad he's back! Praying for good shunt function and no infection! What a unique kind of gift all these medical procedures are.

Erin Bright Haynes said...

So happy to see these pictures this morning. God is good....all the time.

Mim Dartnall-Smith said...

Hopefully each day from here on Levi will be stronger and more resistant to infection xx ♡

Dan Sinclair said...

Thanks for the encouraging update. Continuing to pray.

Barb Paetz said...

He’s so beautiful. Praying. ❤️

Joyce Lloyd said...

Karyn, so excited about hearing this wonderful news concerning Levi ,
He truly is a miracle in the works from God. My prayers are still with his mom and dad and all those who's life have been touched with this precious baby. May God receive all the glory and may He heal Levi completely, In His Holy Name I pray.
Thank you for sharing these precious pictures.

Peggy Sauter said...

That's wonderful news. So glad to hear it.

Patricia Holloway said...

Continuing to pray for each of you.

Sherri Neudorf said...

Thank you for the update. Continuing to pray.

Charmaine Block said...

Praying❤️ He is so beautiful and possesses such a rich testimony and he doesn't even know it��

Marg Paisley said...

So glad to see this today!! Praying for Levi and his parents

Leslie Gallagher said...

Such a little trooper! Praying for him and his mom and dad ❤️

Maureen Wasdal said...

So glad to see this update of Levi doing better. Continuing to pray.

Margaret Cardiff Martin said...

So sweet. Praying.

Evelyn Ironside said...

I've been praying for you all. Love you.

Karan Gleddie said...

Loved the pictures and update such a precious little one. Thank you.

Brenda Lee Raine Hartley said...

So exciting to see the pictures of him yawning and then his bright little eyes wide open and alert!! God is so good!! We will continue to keep little Levi and all of you in our prayers! Love you!!❤️

Bobby John said...

I have been praying for Him and will continue to do so. Thanks for the updates.

Sarah Chelli said...

Sending our love and prayers for Levi and parents

Anonymous said...

So true Angie. Continuing to pray for Levi, his parents and all the family & medical teams. Those last couple of pictures are truly precious.

Murray Mikulak said...

So glad to read & see he is progessing well!

Rachel Shah said...

Thank the Lord for answered prayers..Love this little munchkin.. so glad to see those chubby cheeks and beautiful bright eyes! ❤️����